Soooo. Yesterday I saw my neurologist. He is a busy man who practically runs between patient beds and clinical rooms and doesn't seem to stop. He is an oddly attractive character who wears tight shirts and has a curiously groomed moe. This is, of course, irrelevant but it helps set the scene. I suspect he also moonlights as a comedian as he possesses brilliant comic timing and loves to take the piss out of me whenever the opportunity presents itself. My partner, Wolfgang, and I agree that he is very likeable, especially when he has good news.
So. The BIZ. After the initial how-do-you-dos we got right down to it. Short story long: he feels I should do Rituximab for the next three years. I must admit I was shocked - I didn't realise we were looking at that length of time for treatment. I get it though. I had a very aggressive onset. He said he wants to see the MS totally quiescent for a reasonable period of time and I'm fine with that. I am just not ready to accept three years of chemo so I asked if we can take it six months at a time and he seemed amenable to that - especially since I am in my 'child-bearing' years. I find it hard to keep a straight face when confronted with that phrase. Regardless of the fact that it is...well, true. We discussed my general well-being, which is poor, and he attributed my propensity for illness to the chemo. It's an immuno-suppressant so what can you expect?
While Dr 'Micky' (I just decided on this nickname) was scrolling through my records he briefly brought up a profile MRI picture of a head and brain on his PC screen. I asked him excitedly if it was my brain and he looked at me seriously and flatly said, 'No. You don't have one.' HILARIOUS.
He agreed to walk us through my series of MRIs since I have never seen the pictures. Again, I got a shock. He pointed to several large white patches on different brain images. They were my very own multiple scleroses. Aww! I thought they would be little, tiny patches that had wreaked massive havoc on my body. In fact, the patches were big. Some seemed to be in the order of 1-2 cms in size. Not mms - cms. I decided that instead of spurting expletives, as is my want, that I would try to have a sense of humour about it. 'No wonder I felt so bad," followed by a lame chuckle. Ok - so maybe I said 'shit' instead of 'bad', but this is a massive improvement for me. There has been so much crap news this year that I must admit my language has regressed to that of a 13 year old boy experimenting with the feel of new swear-words on his tongue. Colourful, in a word. So what, though? I'm all grown up. NB: if you are a future employer, I don't swear at work. Much. And I am REALLY SMART.
So that's the end of that chapter for now. I can go back to having an appetite and not feeling crazy-nervous. I go back in a fortnight to see Micky to discuss blood test results and book in for two infusions of Rituximab, the wonder drug. I really need to gear myself up for it. The build up is full on and the infusion process is especially daunting. I am excited to see a new MRI of my brain though. MRIs have so far not resulted in good news for me so I'm hoping they show a diminishment of the lesions. I'm feeling quietly optimistic and I have a good feeling about it! Wish me luck!
P.S. Eyeballs look COOL in MRIs - you should google it!
So. The BIZ. After the initial how-do-you-dos we got right down to it. Short story long: he feels I should do Rituximab for the next three years. I must admit I was shocked - I didn't realise we were looking at that length of time for treatment. I get it though. I had a very aggressive onset. He said he wants to see the MS totally quiescent for a reasonable period of time and I'm fine with that. I am just not ready to accept three years of chemo so I asked if we can take it six months at a time and he seemed amenable to that - especially since I am in my 'child-bearing' years. I find it hard to keep a straight face when confronted with that phrase. Regardless of the fact that it is...well, true. We discussed my general well-being, which is poor, and he attributed my propensity for illness to the chemo. It's an immuno-suppressant so what can you expect?
While Dr 'Micky' (I just decided on this nickname) was scrolling through my records he briefly brought up a profile MRI picture of a head and brain on his PC screen. I asked him excitedly if it was my brain and he looked at me seriously and flatly said, 'No. You don't have one.' HILARIOUS.
Re-enactment only. Really. |
So that's the end of that chapter for now. I can go back to having an appetite and not feeling crazy-nervous. I go back in a fortnight to see Micky to discuss blood test results and book in for two infusions of Rituximab, the wonder drug. I really need to gear myself up for it. The build up is full on and the infusion process is especially daunting. I am excited to see a new MRI of my brain though. MRIs have so far not resulted in good news for me so I'm hoping they show a diminishment of the lesions. I'm feeling quietly optimistic and I have a good feeling about it! Wish me luck!
P.S. Eyeballs look COOL in MRIs - you should google it!
I understand what you said about Mickey Moo ( I was going to put Dr in front of his name but somehow plain old Micky Moo seems to better suit) he has a rather strange charisma and let's face it, he is awefully smart. YOU dear girl are brilliant!!!! <3
ReplyDelete